Welcome Summer!!
I know it's been a little quiet here, but things have been not so quiet with me.
Since we were last together.....we shaved my head because the hair was just falling in gobs and looked like straw. Thankfully I kept my scarves from before, as well as adding a few new including a nice hat ;)
Started Keytruda May 3rd. Took it with Halaven. Lasted about 2 hours. Things started out normal. Headaches, abdominal pain, fatigue, constipation, you know, the fun stuff. By the 4th day after, my skin started itching. Was not too alarmed as that is a possible SE of Keytruda. By day 5 it was now a visible rash on my stomach.
At day 8, when I went for Halaven only (which ended up including magnesium and potassium), I showed it to the nurse. We went on it was a reaction to a new pair of leggings I threw on before washing (we've all done it, admit it), and my skin was sensitive to it. She told me to take Benadryl and use cortisone. Home I went to start the SE all over again. Now I get to add evening chills to the mix the first night, low stamina, and weak legs. More fun!
The true fun stuff was coming because my sister came for a visit while Bob went to Florida. What a fun long weekend!! We stayed in our PJs one day, watched old movies, went shopping, ate out and just had a great time relaxing together.
Unfortunately my rash only got worse during this time but she was here to help and got to visit Froedert with me. Now who would want to miss out on that!? During my hospital visit they told me to try Zyrtec and Pepcid as well as calamine (which I had been using) and Sarna (which my sister suggested). Finally after two weeks the rash was mostly gone and the itching tolerable. Went for a nice motorcycle ride one nice day, and the rest of the time I stayed home because of all of our "great" weather that didn't want to leave. I also went to see Book Club with friends, I would recommend it. Funny.
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I went yesterday for my doctor visit and chemo/Keytruda. My counts were good, yay, I got treatment. My doctor thinks the rash may be an allergic reaction, boo! Because of this, I only got Keytruda. We are going to see if the rash happens again with just one med. Maybe the reaction is from the combination. If no rash, I will get Halaven next week. Now we wait and see. 🤞
My summer officially starts tomorrow with the annual gathering of Rhythm Method fans at Immacculate Heart. And, a Memorial Day visit to The Bunker and their Memorial Day Salute. I hope everyone has a fantastic holiday weekend, but please take a few minutes to remember the reason for the occasion. 🇺🇸🎗️✝️
On a finally happy note, I'm a grandma! Meet my four legged granddog, Moose. A soon to be 200 pound Mastiff. 😳
